Tuesday, July 31, 2012

The fire is in my FACE!!! (We hope.)


I have been completely uninspired to write a blog. Honestly, I had nothing positive to report. Several weeks ago, after a few big falls, I parked my walker and have been in my scooter full time. Whenever I had a chance, I laid down. I had no motivation and zero energy. The shakiness in my hands was noticeable and beginning to affect my ability to drink, eat, brush my teeth, etc. I’m currently typing with two fingers.  The list of “Things I Used To Be Able To Do” was growing. Call it self-pity but I truly felt that anyone else in my condition would be bed-ridden and that’s what I wanted to be.
Then came hope.
My husband put it best on Facebook:

Something viral has been suspected for some time now. Or maybe even layers of viruses. As you know, viruses can lay dormant, hide, and even cloak themselves to appear to be something they are not. Clever and sneaky little bastards.

Dawn had 4 wisdom teeth pulled about a year prior to her first MS symptoms. We'd just never connected those two dots. On her docs recommendation, we had a CT scan of her jaw area done. Today we sat with a biological dentist to read and interpret the scans. We were HOPING to find some pockets of nastiness in the areas were her teeth used to be. BINGO. Two big areas on her lower jaw. She will have those areas cleaned out and filled thru surgery. Her immune system has been locked-on and battling those two hidden areas 24/7 for the last 15-plus years. That battle has tied-up and drained the resources of her already-taxed immune system, thus, not allowing it to focus on much of anything else. With those areas dealt with, her strength should return. And her body should start healing itself. It won't be an over-night thing,  but it is FANTASTIC news. And my goodness... she deserves some good news.


Someone in my position that has barked up a lot of trees only to be disappointed may be more cautious. I guess I’m not very cautious because I’ve got my hopes up big time. The surgery is slated for August 28 and that can’t come soon enough. We will, of course, document the process as always. Wouldn’t that just be grand?

Wednesday, May 30, 2012

HAPPY NATIONAL MS DAY TO ME!
I’m celebrating National MS Day by finally updating my blog. What are we supposed to do on this National Day? Eat cake? Perhaps they could commemorate the day by making some sense of this stinkin’ condition. Here is my personal opinion:  (I’m not formally researched or medically educated but I’ve lived with it for 14 years so I get to spout off.)
I think Multiple Sclerosis is a symptom, not a disease in and of itself. It comes on because of different factors and many causes are to blame. In my case, it’s viruses, bacteria, and layers of toxins.  My theory makes sense – they can’t figure out exactly what causes it (since it’s different for all of us) and they can’t (or won’t) fix it.
Therefore, if I’m going to get better, I need to make progress in cleaning up the internal, microscopic culprits. I’ve tried so many things but haven’t made a huge dent. It’s a tricky process.
I longed to be one of the successful ones. I wanted to join the guy who cured his MS by eating 10+ servings of vegetables per day. (I’ve been doing that for a long time now.) I wanted to stand alongside the guy from The Beautiful Truth (documentary) who cured his cancer by juicing (been doing that for 4 and a half years.) That worked for them and I know it works for many others. In fact, in almost all conditions, I truly believe we’d be better off with a clean diet, loaded with veggies and superfoods, and taking as few pharmaceuticals as possible – preferably none, realistically, maybe a small amount. I believe prayer, my extreme diet, moving, and determination have kept me from being bedridden. I’m still dressing myself and driving. The way I live my life has kept me going. I’m 100% sure of that.
So what’s the next step? I’m looking into Low Dose Naltrexone (LDN). I’ve read some success stories and it’s worth a try. I’ll report on the results. In the meantime, I have no choice but to continue to focus on nutrition and movement. But more than anything else, I will focus on prayer and gratitude no matter what my circumstances. As I told a friend today, healing awaits but in the meantime, there is good life to be lived.