Monday, August 2, 2010

Front Page News

Great exposure, Tennessean! Thank you! If you happened to have missed it, click HERE for the story!

What has been most overwhelming since the story ran are the people who have sent me emails and reached out to me on Facebook. I'm touched by all of them. I'm honored to be an inspiration and to be of any help to people out there who are just like me...struggling with a disease and not given hope by their doctors. There have been many emails and I'm going to reply to each and every one so be patient if you haven't heard from me yet.

There was also a huge amount of comments made on the story which sparked debate about stem cells in the US and also whether this treatment was viable at all.  Honestly, it was hard to read some of them. Doubt and discouragement creep in so easily. Here is a sample:

Wow, I feel sorry for Dawn and her family, but I have to admit this is some pretty shoddy reporting by the Tennessean. Barely a mention of the fact that this is a complete scam lacking in any scientific validity, preying on the desires of dying patients for miracle cures to rob them of their life savings.

Agreed. This is a south of the border scam, ripoff, outright criminal fraud.

I hope that Tennessean will have a follow up report in 6-12 months. These things unfortunately do not work and if theoretically some stem cells survive, they still will be affected by autoimmune process. Clinic in Tijuana is richer by $30,000 and a lot of people are misled.

To those of you who wrote these comments, shame on you for attempting to crush my faith and the hopes of others reading this. Just a scam? Tell that to my tapping left foot.

My hopes were so huge that I truly thought I'd come home from the treatment and not need my walker anymore. I thought I'd hop off the operating room table and be ready to walk. Reality has set in and I realize that, as I stated in the article, it didn't pull me out of the deep hole, it gave me a ladder. I wasn't able to exercise at all pre-treatment and now I am. I was given the chance to work and get stronger. I will wake up every day for the rest of my life and have to face that challenge. That is my current reality. Without this stem cell treatment, my reality would have been a wheelchair.

Sure, there are bad guys out there who do con sick people and prey on their hopes. But not my clinic in Tijuana. There is no doubt in my mind that they truly want to help their patients. And there is no doubt in my mind that I will stand next to them in Heaven one day. They are truly good men.

To end this on a positive note -

Dear Dawn, You stick to your guns! You and John have entered a controversial area of medicine where people in the United States truly believe that the FDA and the AMA are the final authority in deciding what is best for the population here and their needs as far as medical drugs and medical treatments. When the doctors finally come to an MS patients and say, “there is nothing else I can do for you” what are your options? You can roll over and make believe that your life is over, you can wait and hope that in 10 to 15 years the FDA does approve stem cell treatments and you will still be around to get it or as you did, look for alternative medical procedures in other countries that allow these types of treatments and where many other people in your situation have benefitted from them. People need to look at the clinical trials that are happening all over the US using Adult Stem Cells. This treatment process works and you are living proof that life goes on and life gets better with faith, hope and a little help from your own stem cells!
Peter K. Sidorenko, Stem Cells for Hope

3 comments:

PK said...

Stay strong! You are the vanguard for something new and exciting with a lot of potential. What's crazy is how other countries are making faster inroads on stem cell research than the same country that first put a man on the moon. Thankfully, progress does not rest within nations, but within us all, and you are leading the way.

Rhythm 'n Pitch Music Education Center said...

Woo hoo Gustys! You guys rock like no other. What great exposure. Keep up the good, hard work Dawn. You are our miracle and give hope and inspiration to more people everyday. Keep thinking about that when you're on your bike and remember that your doctor's mouth is going to hit the floor when you come walking into the office for a follow-up.

Anonymous said...

Congrats on finding a treatment! Hope I get one someday. :)

-a neighbor in Kingston Springs